Today I received the following notice from the National Vulvodynia Association about an important development:
Treatment Registry Now Enrolling Women in Six States
Arkansas, Colorado, Florida, Ohio, Maryland, Washington DC
NVA funded the creation of the first Vulvodynia Treatment Registry because it is unacceptable for women not to have scientific information on which to base their treatment choices. We’ve now expanded the Registry project to seven enrollment sites in six states: Arkansas, Colorado, Florida, Ohio, Maryland and Washington DC.
In addition to generating vital data on which treatments are most effective for different vulvodynia subtypes, your participation will help Registry investigators identify factors that can predict treatment success and guide the development of large controlled trials of promising therapies.
If you are between the ages of 20 and 45 and suffer from vulvodynia, you may be eligible to participate in this study. (We’re also working to obtain a grant that will enable Registry providers to enroll women over age 45 starting this summer.) The study does not provide free medical care and treatment. Participation is voluntary, does not include any experimentation and will not change your treatment recommendation.
To read more about the Registry project, please visit NVA’s web site.
To speak to a Registry coordinator about participating in the following states, contact:
Little Rock, Arkansas
Christina Hutchinson (501-686-6799, firstname.lastname@example.org)
Los Angeles, California
Jill Zika (303-602-9069)
Orlando, Florida (2 sites)
Lilia Portilla (407-303-2721, email@example.com)
Gwen Monroe (443-632-0200)
Sara-Jane Salstrom (330-375-4293, firstname.lastname@example.org)
Hillary Tolson (202-887-0568)
Health care providers who would like to obtain Registry flyers to distribute to their patients should contact Ms. Portilla.